Recently, I was introduced to a woman by the name of Woniya Federoff. Woniya is a friend of a friend who was interested in joining a support group I am starting for Chronic Lyme Disease. We have not met in person yet, but she hopes to attend our first meeting at my house on August 16th. As I have mentioned before, Lyme is very unpredictable and given the condition of Woniya's health currently, she won't know if she will be up to it until she wakes up that morning but we are really hoping she can join us. This is the reality of Lyme Disease and it makes planning anything really tough.
Woniya's story touched me deeply and I haven't been able to get her out of my mind. Woniya was brave enough to share her story via YouTube and she gave me permission to post it to my blog. Due to years of misdiagnosis, Woniya is dealing with advanced, late-stage Lyme which has developed into what is referred to as "Neuro Lyme" or "Lyme Neuroborreliosis".
Sadly, Woniya's story is not at all uncommon or unusual and could have very easily been me. By the time I started treatment with the Rife machine, I had already experienced two full-fledged seizures, one at a shopping mall in the presence of my three very scared children. It was terrifying for all of us. I recognize now that seizures can indicate the beginning of Neuro Lyme and this fact terrifies me even more.
Woniya's video is not easy to watch - it's positively heartbreaking, I will warn you. But PLEASE, I implore you to watch it because it's real and it's raw. This is what Neuro Lyme looks like for thousands of people and we cannot continue to bury our heads in the sand. We need to show people what is happening all over the world before millions more end up like Woniya. I truly believe that once people realize the truth, there will be extreme outrage. How could there not be?
This is what can happen if early diagnosis does not occur, and unfortunately this is the case for the great majority of people suffering from Lyme Disease, which for all its publicity and acknowledgement by the public and most doctors to be a real 'disease', it is NOT RECOGNIZED by health insurance companies to be a RECOGNIZED DISEASE, eligible for insurance coverage.
Like most Lyme patients, Woniya is struggling to cover the insane cost of treatment for her illness. As she wrote in an email to me, "I'm fine with you posting my video to your blog. At first I was paranoid about it being anywhere. I was trying to get things covered. I'm still dealing with trying to get things covered through insurance claims. I had friends say it needed to be out there and they started my Give Forward campaign. I don't know what we would have done without that. It has paid for my first months of treatment. It is amazing how fast you burn through those funds. This is such an incredibly expensive disease. I had to stop working."
I can't say this more emphatically: Woniya's story is just one of MANY! She exemplifies the reason that I am on this quest to bring much needed attention to this devastating disease. Additionally, I feel a responsibility to protect our future generations. Would you want your child to endure this agony??? Would you want your child to watch either of their parents go through such horror???
This is Woniya's story:
"From the Depths of Darkness I Will Find the Light"
Woniya Federoff
https://youtu.be/wlNHGdNEb0EIf you or someone you know is experiencing unexplained, undiagnosed, chronic symptoms, PLEASE LISTEN! Locate (or tell them to) a doctor who can properly diagnose Lyme. This requires a Lyme-Literate physician who can order a Western Blot test and/or give a clinical diagnosis. You have nothing to lose - if it's not Lyme, then lucky you. But if it is Lyme Disease and you can start treatment early, you have a much better chance of getting well. And get yourself a Rife machine - pronto!
LYME DISEASE FACTS:
- Children are at the highest risk of contracting Lyme Disease and are more vulnerable to central nervous system infections.
- Transmission of Lyme Disease and other infections can take place in a matter of minutes, particularly if the tick is not removed properly.
- Lyme Disease has been called "The Great Imitator" and can be mistaken for ALS, MS, Chronic Fatigue Syndrome, Fibromyalgia, Alzhemer's, Parkinson's, autism, and other illnesses.
- Research suggests that Lyme Disease and other infections can spread from mother to baby during pregnancy.
- Studies show that standard laboratory tests recommended by the CDC to diagnose Lyme Disease miss approximately half of actual cases, leading to misdiagnosis and an infection that is more difficult to treat.
- Over 63% of patients treated for Lyme Disease continue to suffer symptoms that can be debilitating.
- The CDC estimates that there are 300,000 new cases of Lyme Disease each year in the United States. Some experts believe the actual number of new cases could be as high as 1-2 million new cases per year in the US alone.
- Lyme Disease has been reported in every state except Hawaii and has been found on every continent except Antarctica.
If you have questions, or know someone who does, please don't hesitate to contact me. I am ready and willing to help anyone who is dealing with or suspects they may have Lyme & Co and/or Morgellon's Disease.
Thank you for listening…pass it on!
:-) Liz
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